Update about Karina from Denmark by Rebecca Hansen

Karina is still alive and still at home.

The familys lawyer is advising them and will guard
Karinas rights. This lawyer has had many cases with ME patients and he understands the disease.

Thanks to Greg Crowhurst - http://www.stonebird.co.uk - and
perhaps others - the Danish Embassy in London
became aware of the case and contacted the Danish
Board of Health.

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The Embassy is taking this case very seriously. There is
pressure on the Danish government from many sides
now to treat this case correctly.

The power of facebook!

Yesterday the Board of Health contacted a
neuropsychologist about Karinas case. He was asked to
contact Dr. Isager and to have the two of them look into
the case.

We see it as a positive step that the Board of Health is
asking for Dr. Isagers opinion in this case.

Dr. Isager has devoted years to helping ME patients,
making home visits and helping them when no one else
would.

He has endless heartbreaking stories about the cases he
has seen in his years of helping these abandoned
patients.

I have the highest respect for Dr. Isager. He wrote a
book in Danish last year called Blinde Pletter: Blind
Spots - on the Medical and Health Sectors Amputated
Reality: http://bit.ly/ILbAZH

It is about the blind spots the medical profession has for
diseases like ME and a criticism of the way the Danish
Health system treats them.

It is our hope that the Board of Health and the
neuropsychologist will listen to Dr. Isagers advice about
how to treat Karina.

What we want right now is to get Karina the medical
assistance she needs to keep her alive.

As for the neuropsychologist - I will not give out the
name because I dont want this person bombarded by
mails.

We sent information about ME to this person and have
offered to be of assistance in any way we can. We are
working to keep the tone professional and friendly.

We, the ME Association, hope that this case can start a
constructive dialog with the Danish Board of Health
about what ME is and how these patients can be helped.

I am sorry that I cant share more right now, but please
know that if anything happens with Karina I will post
immediately.


Rebecca