Hello All,
How many of you have needed to use personal or work time to provide care for
a family member who has a disability or an ageing parent? Do you work in
the field of Health Care and provide Personal one-on-one care?
For the last many years I have been working with Individuals with
disabilities or the frail elderly and providing Consulting type assistance
and direct in-home care. As our population ages, providing care is becoming
an issue that is touching more and more families. At the same time our
Society is finally reducing barriers for Younger Individuals with
disabilities and encouraging them to live to their fullest potentials. The
Paralympic Games will start in England in just a few short weeks are
testament to this.
Yet, too often the families who are providing the care and support have
little support themselves.
I am pleased to announce the 1st Annual Prestige Health Care Conference.
This is a chance for front line medical personnel to get together and take
part in workshops about improving your Practice and also how to look after
yourself. Also through which we hope to provide front line medical
personnel (paid or volunteer) with new ideas and tools to help them in their
work.
It is also a chance for Individuals with disabilities or their care/family
members to speak directly to front line medical personnel and explain
frustrations and what is working.
Call for Presenters and also for Exhibitors is now open. If you do not feel
comfortable presenting yourself, would you like to suggest someone who has
been of assistance in your journey into Personal Medical Care?
We are also seeking Companies that make or represent Personal Medical
Devices, Daily Living aides and other related products.
Please review the full Call for Participation at
www.fashionmoves.org or contact me directly.
Thank you
Ruth J Clark
Providing Prestige Health Care, 1st Annual Conference
October 9 - 10
Kamloops Convention Centre
Kamloops, B.C., Canada
www.fashionmoves.org
250-314-1849 (Western Canada)
rjclark@telus.net
Saturday, July 28, 2012
Friday, July 27, 2012
Eugenics in California: A Legacy of the Past?
A free event open to the public, “Eugenics in California: a Legacy of the
Past?,” will take place at the Berkeley Law School on the UC Berkeley
campus (105 Boalt Hall) on August 28, 2012 from 12:30 to 2 pm.
For much of the 20th century, California was at the forefront of eugenic
ideology and practices in the United States, and holds the dubious
distinction of being the state with the highest number of eugenic
sterilizations performed under the authority of law – some 20,000
procedures between 1909 and the mid-1950s. Coerced sterilizations
continued in public hospitals into the 1970s, and it has recently come to
light that in very recent years, women prisoners in California have been
sterilized without their consent or knowledge. Today, California is a
leader in research and services related to human genomics and assisted
reproductive technologies. Speakers at this public event will consider the
long history of eugenics in California and explore continuities and
discontinuities in the uses and misuses of genetic ideas and practices.
Dean Christopher Edley, Berkeley School of Law, will give opening remarks
to welcome attendees.
SPEAKERS:
"Eugenic Sterilization in California: Stories and Statistics"
Miroslava Chávez-García, University of California at Davis, and Alexandra
Minna Stern, University of Michigan
We provide an overview of the patterns of the 20,000 eugenic sterilizations
performed in California state institutions from 1909 to 1979, with close
attention to race, gender, class, and diagnosis. We will also highlight
stories of sterilization victims and the ways in which they attempted to
challenge the state's authority to control and contain their reproductive
rights. As we will demonstrate, the process had a devastating impact on
the victims.
¿Más Bebés? (documentary film)
Renee Tajima-Peña, University of California at Santa Cruz; Virginia Espino,
University of California at Santa Cruz, and Kate Trumbull, documentary
filmaker
The feature-length documentary ¿Más Bebés? (working title) investigates
the history of Mexican American women who allege they were coercively
sterilized at Los Angeles County-USC Medical Center during the 1960s and
70s. Many spoke no English, and testified that they were prodded into
tubal ligations during active labor. The sterilizations triggered the
1978 class action lawsuit, Madrigal v. Quilligan, and a protest campaign
that galvanized the Chicana feminist movement.
Eugenics in California Women’s Prisons Today
Kimberly Jeffrey and Courtney Hooks, Justice Now
Since 2003, Justice Now has been working collaboratively with people in
California’s women’s prisons to document how prisons violate the
international right to family and function as a tool of reproductive
oppression. Presenters will place a spotlight on personal experience with
as well as the systemic pattern of destruction of reproductive capacity of
women of color and gender variant people in California women’s prisons
through several state-sanctioned policies, including forced and coerced
sterilizations (e.g. the illegal and routine sterilization of hundreds of
people in prison during labor and delivery), and other violations of safe
motherhood and reproductive justice.
Should We Worry About a New Eugenics?
Marcy Darnovsky, Center for Genetics and Society
Today's fast-developing genetic and reproductive technologies offer
significant benefits, but can also be misused in ways that exacerbate
existing inequalities and create entirely new forms of injustice.
California, a hotbed of eugenic advocacy in the last century, is today a
center of biotechnology research and commercial development and the
assisted reproduction sector, as well as home to some troubling
techno-enthusiastic ideologies. Our efforts to confront California's
eugenic history can help prevent these dynamics from veering toward a new
eugenics.
CONTACTS: Susan Schweik, UC Berkeley, sschweik@berkeley.edu, Marcy
Darnovsky, Center for Genetics and Society,
darnovsky@geneticsandsociety.org
Co-sponsored by Berkeley’s Haas Diversity Research Center, School of Law,
Institute for the Study of Societal Issues, American Cultures Center,
Disability Studies program, and Center on Reproductive Rights and Justice.
This event is wheelchair accessible. Captioning will be provided. To
request an accommodation, please email disability@berkeley.edu.
Past?,” will take place at the Berkeley Law School on the UC Berkeley
campus (105 Boalt Hall) on August 28, 2012 from 12:30 to 2 pm.
For much of the 20th century, California was at the forefront of eugenic
ideology and practices in the United States, and holds the dubious
distinction of being the state with the highest number of eugenic
sterilizations performed under the authority of law – some 20,000
procedures between 1909 and the mid-1950s. Coerced sterilizations
continued in public hospitals into the 1970s, and it has recently come to
light that in very recent years, women prisoners in California have been
sterilized without their consent or knowledge. Today, California is a
leader in research and services related to human genomics and assisted
reproductive technologies. Speakers at this public event will consider the
long history of eugenics in California and explore continuities and
discontinuities in the uses and misuses of genetic ideas and practices.
Dean Christopher Edley, Berkeley School of Law, will give opening remarks
to welcome attendees.
SPEAKERS:
"Eugenic Sterilization in California: Stories and Statistics"
Miroslava Chávez-García, University of California at Davis, and Alexandra
Minna Stern, University of Michigan
We provide an overview of the patterns of the 20,000 eugenic sterilizations
performed in California state institutions from 1909 to 1979, with close
attention to race, gender, class, and diagnosis. We will also highlight
stories of sterilization victims and the ways in which they attempted to
challenge the state's authority to control and contain their reproductive
rights. As we will demonstrate, the process had a devastating impact on
the victims.
¿Más Bebés? (documentary film)
Renee Tajima-Peña, University of California at Santa Cruz; Virginia Espino,
University of California at Santa Cruz, and Kate Trumbull, documentary
filmaker
The feature-length documentary ¿Más Bebés? (working title) investigates
the history of Mexican American women who allege they were coercively
sterilized at Los Angeles County-USC Medical Center during the 1960s and
70s. Many spoke no English, and testified that they were prodded into
tubal ligations during active labor. The sterilizations triggered the
1978 class action lawsuit, Madrigal v. Quilligan, and a protest campaign
that galvanized the Chicana feminist movement.
Eugenics in California Women’s Prisons Today
Kimberly Jeffrey and Courtney Hooks, Justice Now
Since 2003, Justice Now has been working collaboratively with people in
California’s women’s prisons to document how prisons violate the
international right to family and function as a tool of reproductive
oppression. Presenters will place a spotlight on personal experience with
as well as the systemic pattern of destruction of reproductive capacity of
women of color and gender variant people in California women’s prisons
through several state-sanctioned policies, including forced and coerced
sterilizations (e.g. the illegal and routine sterilization of hundreds of
people in prison during labor and delivery), and other violations of safe
motherhood and reproductive justice.
Should We Worry About a New Eugenics?
Marcy Darnovsky, Center for Genetics and Society
Today's fast-developing genetic and reproductive technologies offer
significant benefits, but can also be misused in ways that exacerbate
existing inequalities and create entirely new forms of injustice.
California, a hotbed of eugenic advocacy in the last century, is today a
center of biotechnology research and commercial development and the
assisted reproduction sector, as well as home to some troubling
techno-enthusiastic ideologies. Our efforts to confront California's
eugenic history can help prevent these dynamics from veering toward a new
eugenics.
CONTACTS: Susan Schweik, UC Berkeley, sschweik@berkeley.edu, Marcy
Darnovsky, Center for Genetics and Society,
darnovsky@geneticsandsociety.org
Co-sponsored by Berkeley’s Haas Diversity Research Center, School of Law,
Institute for the Study of Societal Issues, American Cultures Center,
Disability Studies program, and Center on Reproductive Rights and Justice.
This event is wheelchair accessible. Captioning will be provided. To
request an accommodation, please email disability@berkeley.edu.
Monday, July 23, 2012
Blind With Camera workshop: Non-retinal photography in India
*Infinite Ability <http://infiniteability. yolasite.com/>*, the disability
subgroup of Medical Humanities Group of University College of Medical
Sciences, (UCMS), Delhi is organizing a workshop entitled ‘*Blind With
Camera*’. This is an attempt to empower the visually impaired and blind
student’s of Delhi University. The mission is to create a community where
people with visual impairment can learn, participate, enjoy and practice
the art of photography.
As workshop organizers we believe that disability is a diverse human
condition, people with disability are “differently-abled” and art by them
is an invaluable form of expressions. We can prove that they have
interesting way to perceive and lead life and art “by” all and “for” all
can lead to an equitable society.
Mr Partho Bhowmick started the *Blind With Camera* project in 2006 and
successfully driven the project into a national exhibition travelling
across India. Early 2009, he founded the Beyond Sight Foundation, a
not-for-profit organization prompting the art of photography in people with
visual impairment and capacity building around the “Non-Retinal” Art
culture in India. It provides a platform for the visually impaired to share
their “Inner Gallery” of images – their imagination and point-of-view of
the visual world, and speak out about their unique experience, feelings,
challenges and hopes.
Pictures taken by the visually impaired during the photo workshop on 27-28
August will be converted into touchable raised pictures, trainers will
describe the picture and guide the participants to understand the raised
pictures by touch. A part of the workshop will be devoted to sensory
photography for the sighted. Here, in a role reversal, trained visually
impaired photographer will guide blindfolded sighted people to take
pictures. Sensory photography bring sighted people in contact with visually
impaired – reduce the gap between “us” and “them.”
These pictures will then be exhibited in accessible ways (touch & feel
images, audio tours, Braille notes, Large Prints and visual aids)along with
normal photographs on 3 December 2012 on the occasion of International Day
of Persons with Disabilities. We hope, this public “inclusive” exhibition
will go a long in spreading awareness and encouraging specials schools to
used multisensory materials for general education for the visually impaired
(an approach which is not extensively used in India).
The Enabling Unit, UCMS <http://enablingunit.yolasite. com/> and Equal
Opportunity Cell, Delhi University are the joint partners of this workshop.
--
Dr Satendra Singh, MD, FSS
Assistant Professor of Physiology
University College of Medical Sciences
& GTB Hospital, Delhi, India-110095
Coordinator, Equal Opportunity Cell
Founder, Infinite Ability
Infinite Ability: exploring disAbility through
creativity<http:// infiniteability.yolasite.com/>
Medical Education Unit, UCMS <http://medicaleducationunit. yolasite.com/>
<http://medicaleducationunit. yolasite.com/members-pages.php
subgroup of Medical Humanities Group of University College of Medical
Sciences, (UCMS), Delhi is organizing a workshop entitled ‘*Blind With
Camera*’. This is an attempt to empower the visually impaired and blind
student’s of Delhi University. The mission is to create a community where
people with visual impairment can learn, participate, enjoy and practice
the art of photography.
As workshop organizers we believe that disability is a diverse human
condition, people with disability are “differently-abled” and art by them
is an invaluable form of expressions. We can prove that they have
interesting way to perceive and lead life and art “by” all and “for” all
can lead to an equitable society.
Mr Partho Bhowmick started the *Blind With Camera* project in 2006 and
successfully driven the project into a national exhibition travelling
across India. Early 2009, he founded the Beyond Sight Foundation, a
not-for-profit organization prompting the art of photography in people with
visual impairment and capacity building around the “Non-Retinal” Art
culture in India. It provides a platform for the visually impaired to share
their “Inner Gallery” of images – their imagination and point-of-view of
the visual world, and speak out about their unique experience, feelings,
challenges and hopes.
Pictures taken by the visually impaired during the photo workshop on 27-28
August will be converted into touchable raised pictures, trainers will
describe the picture and guide the participants to understand the raised
pictures by touch. A part of the workshop will be devoted to sensory
photography for the sighted. Here, in a role reversal, trained visually
impaired photographer will guide blindfolded sighted people to take
pictures. Sensory photography bring sighted people in contact with visually
impaired – reduce the gap between “us” and “them.”
These pictures will then be exhibited in accessible ways (touch & feel
images, audio tours, Braille notes, Large Prints and visual aids)along with
normal photographs on 3 December 2012 on the occasion of International Day
of Persons with Disabilities. We hope, this public “inclusive” exhibition
will go a long in spreading awareness and encouraging specials schools to
used multisensory materials for general education for the visually impaired
(an approach which is not extensively used in India).
The Enabling Unit, UCMS <http://enablingunit.yolasite.
Opportunity Cell, Delhi University are the joint partners of this workshop.
--
Dr Satendra Singh, MD, FSS
Assistant Professor of Physiology
University College of Medical Sciences
& GTB Hospital, Delhi, India-110095
Coordinator, Equal Opportunity Cell
Founder, Infinite Ability
Infinite Ability: exploring disAbility through
creativity<http://
Medical Education Unit, UCMS <http://medicaleducationunit.
<http://medicaleducationunit.
NY Times Obituary: Stephen Dwoskin, film-maker with polio
Found out over the weekend that Stephen Dwoskin, experimental filmmaker who contracted polio at age 9 and unflinchingly scrutinized his body and its discontents in challenging work throughout his entire career, died June 28 in London, where he'd lived since 1964. He was 73.
Dwoskin's "Behindert" (1974) was a revelation to me. He was a true artist of disability, whose condition informed both his art and life profoundly, yet he is barely known and seldom celebrated in disability circles. Deserves his due.
New York Times Obit available here:
http://www.nytimes.com/2012/ 07/22/movies/stephen-dwoskin- experimental-filmmaker-dies- at-73.html
Best to all,
Lawrence Carter-Long
Public Affairs Specialist
National Council on Disability
1331 F Street, NW, Suite 850
Washington, DC 20004
202-272-2112 Voice
202-603-9209 Cell
202-272-2074 TTY
202-272-2022 Fax
Website: http://www.ncd.gov<http://www. ncd.gov/>
Get regular updates via NCD's Facebook page:
https://www.facebook.com/ NCDgov
Follow NCD on Twitter:
http://twitter.com/NatCounDis
Sign up for regular email updates at:
http://www.ncd.gov/subscribe
Dwoskin's "Behindert" (1974) was a revelation to me. He was a true artist of disability, whose condition informed both his art and life profoundly, yet he is barely known and seldom celebrated in disability circles. Deserves his due.
New York Times Obit available here:
http://www.nytimes.com/2012/
Best to all,
Lawrence Carter-Long
Public Affairs Specialist
National Council on Disability
1331 F Street, NW, Suite 850
Washington, DC 20004
202-272-2112 Voice
202-603-9209 Cell
202-272-2074 TTY
202-272-2022 Fax
Website: http://www.ncd.gov<http://www.
Get regular updates via NCD's Facebook page:
https://www.facebook.com/
Follow NCD on Twitter:
http://twitter.com/NatCounDis
Sign up for regular email updates at:
http://www.ncd.gov/subscribe
Friday, July 20, 2012
NYTimes article on Curtis Mayfield and Ron Amundson's Complaint
In response to
http://www.nytimes.com/2012/ 07/20/arts/music/recalling- curtis-mayfield-souls
-genius-of-gentleness.html
I sent the following (which there's no chance in hell will be published):
"Curtis Mayfield became quadriplegic in 1990. He died in 1999. Your article
reports on this fact by saying that he "lingered for nine years ... before
succumbing."
This is a crude distortion of the facts regarding disability. I became
paraplegic in 1990, and I am still "lingering ... before succumbing." I hope
to linger for many more years. But this verbiage is a crude distortion of my
life, and of Mayfield's.
Physical impairment is not a roadway along the path to death. The fact that
Mr. Mayfield was quadriplegic for nine years does not mean that his death
took nine years to complete. He was a fully alive person while he was
quadriplegic, as am I and all other people who are living with impairments.
It is an insult to state that we are merely "lingering" until death."
Ron Amundson, Dept. of Philosophy
University of Hawaii at Hilo
Hilo, HI 96720
http://www.nytimes.com/2012/
-genius-of-gentleness.html
I sent the following (which there's no chance in hell will be published):
"Curtis Mayfield became quadriplegic in 1990. He died in 1999. Your article
reports on this fact by saying that he "lingered for nine years ... before
succumbing."
This is a crude distortion of the facts regarding disability. I became
paraplegic in 1990, and I am still "lingering ... before succumbing." I hope
to linger for many more years. But this verbiage is a crude distortion of my
life, and of Mayfield's.
Physical impairment is not a roadway along the path to death. The fact that
Mr. Mayfield was quadriplegic for nine years does not mean that his death
took nine years to complete. He was a fully alive person while he was
quadriplegic, as am I and all other people who are living with impairments.
It is an insult to state that we are merely "lingering" until death."
Ron Amundson, Dept. of Philosophy
University of Hawaii at Hilo
Hilo, HI 96720
REMPLOY SOLIDARITY MEETING - BARKING - MONDAY - 22 JULY @ 7PM
Hello Everyone,
DPAC have sent us details of a meeting about an important campaign to save Remploy jobs. It is important that someone from MHRN could attend the planning meeting for action which also has some excellent speakers attending. I can't make it but I hope someone else can.
Denise
Mental Health Resistance Network---------- Forwarded message ----------
From: Andy Greene <AndyG@daii.org>
Date: 20 July 2012 16:32
Subject: REMPLOY SOLIDARITY MEETING - BARKING - MONDAY - 22 JULY @ 7PM
To:
We invite Remploy workers, their families and supporters to a Save the Factories meeting on
Monday 24th July 7 – 8.30pm
at the Spotted Dog, 15a Longbridge Road, IG11 8TN
Speakers include: Remploy Electronics Barking Factory Union Reps & Workers, John McDonnell MP (tbc), Rob Williams NSSN, Ian Bradley Unite Electrical member, George Barrett Independent Cllr Barking & Dagenham, DPAC & RtW & more
FIGHT THE REMPLOY CLOSURES – support disabled workers in Barking
The government has announced their decision to close Remploy factories, set up after the war to provide real jobs for disabled people. 27 factories across the country including the one in Barking are set to close before December. This decision will leave thousands of disabled workers without income. Following an earlier round of factory closures in 2008 disabled workers left without jobs ended up suicidal and ill with only 5% going on to find alternative work. We must not let this happen to disabled workers in Barking.
Disabled People Against Cuts is a campaign led by and for disabled people, campaigning against the Condem government’s vicious attacks on disabled people that risk pushing our rights back decades. John McDonnell MP speaking in the House of Commons in June about the Remploy closures warned the government that our campaign is strong and that disabled people will not go away.
We say we will not give up the fight and let thousands of workers be thrown on the scrapheap. We believe we can win this if we unite in support of the Remploy workers.
for more details & messages of support contact
or
Wednesday, July 18, 2012
Evocative film of interest to deaf studies/ds, in London but on tour across US
*NIGHT SKY* will screen in *London on July 24th, 2012 at 7:30 pm at WHIRLED
CINEMA *
*259-260 HARDESS ST LOUGHBOROUGH JCTN LONDON SE24 OHN*
Night Sky is a 75 minute feature length narrative film by Alison O'Daniel
that enacts a sensory experience on the bodies of the viewers with live
accompaniment and parallel, overlapping stories: two girls–Cleo and
Jay–travel through the desert while a group of contestants compete in a
dance marathon. Sound travels between locations through a hula-hoop window
hanging unnoticed in the midst of the marathon contestants and
simultaneously in the desert air. Sound bleeds between the locations, and
unique screenings with live musical or sign language scores performed by
various musicians and sign language interpreters extends the narrative into
the exhibition space or cinema. Redefining sound and images through
synesthesia and limiting or heightening the sensory palette offers hearing
and deaf audiences a nuanced glimpse of one another’s experiences without
privileging one or the other.
This performance emphasizes music within the film by Ethan Frederick
Greene, Lucky Dragons, and Evelyn Glennie with live musical accompaniment
by *POLLYFIBRE *using adapted tools and objects amplified to create
noise-scapes. Balloons will be provided for the Deaf audience spectrum.
There will be a Q&A after the screening with Alison O'Daniel and Christine
Ellison (POLLYFIBRE).
Screening is free to the public
View the TRAILER HERE <https://vimeo.com/12865622>
CINEMA *
*259-260 HARDESS ST LOUGHBOROUGH JCTN LONDON SE24 OHN*
Night Sky is a 75 minute feature length narrative film by Alison O'Daniel
that enacts a sensory experience on the bodies of the viewers with live
accompaniment and parallel, overlapping stories: two girls–Cleo and
Jay–travel through the desert while a group of contestants compete in a
dance marathon. Sound travels between locations through a hula-hoop window
hanging unnoticed in the midst of the marathon contestants and
simultaneously in the desert air. Sound bleeds between the locations, and
unique screenings with live musical or sign language scores performed by
various musicians and sign language interpreters extends the narrative into
the exhibition space or cinema. Redefining sound and images through
synesthesia and limiting or heightening the sensory palette offers hearing
and deaf audiences a nuanced glimpse of one another’s experiences without
privileging one or the other.
This performance emphasizes music within the film by Ethan Frederick
Greene, Lucky Dragons, and Evelyn Glennie with live musical accompaniment
by *POLLYFIBRE *using adapted tools and objects amplified to create
noise-scapes. Balloons will be provided for the Deaf audience spectrum.
There will be a Q&A after the screening with Alison O'Daniel and Christine
Ellison (POLLYFIBRE).
Screening is free to the public
View the TRAILER HERE <https://vimeo.com/12865622>
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